Thanksgiving in the Lyme world, 2016
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Along with new and continuing challenges for the Lyme community, there is also much to be grateful for this Thanksgiving season. Here’s our gratitude list this year:
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Stellar news coverage of Lyme issues
In addition to producing two half-hour special reports about Lyme disease, Fox5NY has also posted uncut interviews on YouTube, making an astonishing amount of helpful content available to the public. View Part One and Part Two of “Lyme and Reason.”.
The Huffington Post has also stepped up its coverage of Lyme disease, with articles from Mary Beth Pfeiffer, Dana Parish, David Michael Conner. We applaud these journalists for their courageous reporting.
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IDSA Lyme guidelines removed from NGC
The National Guidelines Clearinghouse, a federal database, provides treatment information to health care professionals and insurance companies. In 2016, the NGC removed the IDSA Lyme disease guidelines for being outdated and not in compliance with current standards. Right now, the ILADS guidelines are the only ones for Lyme on the NGC. READ MORE..
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Massachusetts Lyme insurance bill becomes law
This groundbreaking legislation came about thanks to persistent Lyme advocates who worked with equally persistent bill sponsors. Their efforts were supported by thousands of individuals who contacted lawmakers via Voter Voice and other channels, and helped spread the message via Facebook and Twitter. We are grateful to state legislators who listened to their constituents. READ MORE..
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MyLymeData
More than 6000 people have registered for MyLymeData, making it the largest scientific study of Lyme patients ever.
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This year we discussed MyLymeData at several conferences including the prestigious American Association for the Advancement of Science, Columbia University/ Lyme Disease Association, and the International Lyme and Associated Diseases Society. We also participated in the White House Precision Medicine Summit. READ MORE.
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We’re grateful to you, members and friends of LymeDisease.org. With your support, we continue our efforts to empower Lyme patients through advocacy, education and research.
Tags : Lyme gratitude list 2016
Please, please help us Lymies, I hurt so bad & I’m mostly bedridden & feel useless, please have some compassion, its a horrible disease & do my family to go through also, I feel I’m a burden to them:((((