TOUCHED BY LYME: “Most serious undiagnosed health threat in existence”
Many people think that if they had tons of money in the bank, their problems would be solved. However, UK billionaire John Caudwell has found that not to be the case. His son has suffered serious psychiatric issues for years that only recently have been connected to Lyme disease. And it turns out that John Caudwell himself and many other members of his family have been found to have Lyme disease as well.
Caudwell has taken to the airwaves and social media to help spread the word about what he says must be “the most single undiagnosed serious health threat in existence today.”
Here’s a recent appearance on the British program ITV This Morning:
.
And click here for what he said on BBC radio.
TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s VP for Education and Outreach. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org. On Twitter, she’s @dorothyleland.
I would like to thank John Caldwell for standing up for Lyme patients. I have had Lyme for 37 years and it has and still is a living nightmare. I don’t know how Governments in the UK and Australia do not take our plight seriously.
God bless this kind man. He may be able to accomplish what millions of us here in the US have been unable to do! When he does, I hope that our country will stand up and take notice!
THANKS JOHN FROM SPAIN. HERE ALSO THERE ARE LYME. SIMILAR SITUATION…..
Good to have hime on our side, too bad there is not an absolute test for any of the tick borne illnesses.
Too late for my beautiful daughter, but thank you for trying to help others.
Started showing symptoms in 1984. WAs not able to work or do household chores since 2001. Dx with lyme in 2003. Health care system is still ignoring or ignornant.
Thank you!
Thank you, I hope things change soon! I personally believe Lyme disease could be wrecking havoc in every family of this world if things don’t change NOW!
28YRS SINCE i WAS DIAGNOSED WITH MYALGIC ENCEPHALOMYELITIS -MORE OR LESS TOLD BY GP THERE WAS NOTHING HE COULD DO-THERE WAS NO CURE-MORE OR LESS JUST ACCEPT IT-LATER PRIVATE TESTS SHOWED IT WAS LYME.- iNFECTIOUS DISEASE SPECIALISTS IN UK REFUSED TO ACCEPT TEST RESULTS. i HAVE BEEN TO HELL AND BACK WITH THIS ILLNESS AND CANNOT BELIEVE THE ATTITUDE OF NHS DOCTORS WHEN ALL THE RESEARCH PAPERS ARE THERE DOCTORS ARE FAILING TO KEEP UP WITH LATEST RESEARCH- BECAUSE OF NEGLECT I HAVE NOW GOT VERY DEFORMED HANDS, FEET AND KNEES-SEVERE ARTHRITIS. WAS UNABLE TO WORK FROM AGE 45YRS.
28yrs of this illness-John is a knight in shining armour-I thank him from the bottom of my heart and hope something is done before I die
I have lyme going on 8 years and i never know what day or time i get hit with feeling tired or stressed
Hi my name is john and want to thank you for all you have done. I just wish my doctors treated me properly the second time I contracted Lyme. I had a massive bulls eye and a week of hell with temperatures going over 104 degrees, no movement. That’s how bad it hit me. Long story short, I lost my job, my house, my wife and everything I owned. The worse was my children. Well it attacked my Thyroid which i had to have removed or would have died in a year. With seizures and several other symptoms I’m now permanently disabled. The sickness everyday at times I wish it will end. But I’m fighting maybe to see my kids grow up.
Its a great thing your doing and if you have any tips please share.
Keep up the good work helping those you can
Best Regards
John Misko
and they’re only talking about Lyme disease here . . . they don’t even touch on the multitude of co-infections most contract from a tick bite as well, and how complicated they are to treat on their own.
Finally..a man with money who will take this all the way..proving that lymies are not faking our disability…God, has provided the MIRACLE
my son was diagnosed being bipolar at age 10;;we camped all our lives;;i have LD since 85 am disabled, bed and home bound mostly;;severely fatigue;;;attacked my spine had hip and back surgery which made it worse;;has attacked my brain, etc. tested and positive in 98 by 2 hospital and igenex;;now my son is 37 sitting in jail because he tried to commit suicide;;when he came to he panicked wanted to leave and they wouldn’t let him so he tried to escape;;they called security and they said my son assaulted them;;now he sits in jail with 2 counts of 4th degree felony charges;;please pray for him;;he has had severe panic attacks, ptsd, severe depression all his life;;last 4 yrs physically abused, mentally and verbally by his wife;;his life is destroyed. if anyone can help him in any way;;to get his story out;;;;does he have Lyme disease instead of mental disorder???thank you so much for coming forward and being an advocate for all of us, families who have lost ”everything” and still so very sick;;i will be praying for you and your family and everyone in the UK too
we need tests that are accurate with all the different strains of Lyme, we do not have that, this is why so many get denied, the test says negative when in fact the person has Lyme. Proper testing should be first and foremost, I wish Dr K would stop being quoted saying not one person with ALS Ms etc tested negative, for Lyme, when that is not possible due to faulty inaccurate testing.
Lyme is in the UK now??? wow.
And not everyone gets a rash, or tests positive, but has Lyme.
Money DOES make a difference when dealing with a serious misunderstood, misdiagnosed disease like Lyme. At least the Caudwells can see whatever doctor they choose, and don’t have to accept whoever insurance picks. They can afford to pay for their treatment. Of course, that doesn’t guarantee it will work, that they will get better or be cured, but it is an advantage regular folks don’t have.
Glad to see he’s speaking out, though. With his money and fame, maybe more minds can be changed. Hopefully, someday the rest of us will access to treatment like the Caudwells do.