Update on girl with Lyme who was blessed by the pope
In September, a 12-year-old girl with Lyme disease was blessed by Pope Francis during his visit to the US. Since then, various news media outlets have followed her story, spotlighting her insurance company’s refusal to pay for needed Lyme treatment.
On December 20, MSNBC’s Alex Witt interviewed young Julia Bruzzese and her parents live in the studio.
here are the 2 replies i posted on the above feedback about julia’s story:
my late husband, jack’s, RECENT BRAIN AUTOPSY showed the following nov. 22, 2015:
WORLD BREAKING NEWS!!
a FIRST of its kind of these 2 diseases being found in brain autopsies!
*** BORRELIA/chronic lyme disease
and
*** LEWY BODY DEMENTIA, like actor robin williams had, where he committed suicide due to horrendous VIOLENT HALLUCINATIONS that go with this awful dementia disease!
jack’s case is in the process of being written up for SCIENTIFIC MEDICAL JOURNAL PUBLICATION IN THE NEXT FEW MONTHS.
i, a NON-MEDICAL person, will be shown as the NO. 1 CO-AUTHOR above Dr. Alan MacDonald, Paula Pierece, and Tom Grier, PHD.
Jack was NEVER diagnosed with either of these diseases during his lifetime.
Using my daily journals to go back thru, JACK WAS MISDIAGNOSED FOR 35 YRS. ALSO!
he was bitten 10 yrs. later than me while helping his brother build an addition onto their house.
tick came from LUMBER!
since he was NEVER correctly diagnosed, he was NEVER treated with CONTINUOUS ANTIBIOTICS, supplements or alternative therapies.
I’m in process of writing up his medical history to go with this WORLD WIDE BREAKING NEWS!!
i forgot to say on MY own story. using my daily journals to go back to where i was and what i was doing when i was bitten, i eliminated all the NORMAL ways of being bitten.
NO PETS, no gardening as it was SUB-ZERO WINTER WEATHER here in iowa.
i came up with this:
tick came OFF MY FOLK’S CUT CHRISTMAS TREE since we had live ones until youngest sibling graduated from high school.
bettyg, iowa lyme/BORRELIA ACTIVIST
userbetty g just now
*******************************
i was bitten xmas 1969, which began 35 yrs. staight of being MISDIAGNOSED by 40-50 drs. before my CORRECT diagnosis of BORRELIA/CHRONIC LYME DISEASE received JUNE 2004.
now 47 yrs. chronic lyme.
my insurance did NOT pay for ILADS, intl. lyme and associated disease society, lyme treatment guidelines.
they are considered “EXPERIMENTAL THERAPY” so health insurance companies DO NOT pay anything towards our appts., treatments, and prescription/alternative supplements/therapies.
that’s my BRIEF story; completely UNACCEPTABLE to be MISDIAGNOSED for 35 yrs.
i’ll start a 2nd post about my late husband!
bettyg, iowa lyme activist.
userbetty g 8 minutes ago
Shame on MSNBC for not actually reporting on this travesty: the insurance company got away with fraud in claiming that a treatment listed in the National Guidelines Clearinghouse is “experimental”. Name the insurance company and ask them to justify their actions. Hello MSNBC, investigative journalism is a real thing.
My insurance company denied my claim for the same reason but I continued to appeal until they finally backed down from their LIE and paid for two years of IV Rocephin. Their (all insurance companies) business model is to make money off denying care. Fight back. This family should appeal and continue to appeal until they get what they paid for- medical claims covered.