NEWS: Summary of recent Morgellons conference

3rd May 2012

morgellons-007

Morgellons is a mysterious condition that gives rise to fiber-like growths on the skin.

Press release from The Charles E. Holman Foundation:

Austin, TX (PRWEB) May 02, 2012
A multinational panel of medical and scientific professionals met on March 24 and 25, 2012 in Austin, Texas at the 5th annual Morgellons Medical Conference entitled, “Searching for the Uncommon Thread” to discuss the latest findings on Morgellons disease.

Morgellons is a debilitating, systemic illness characterized by the formation of unusual fibers within the skin. In addition to slow-healing skin lesions, those afflicted by the illness also experience overwhelming fatigue, and an array of neurological deficits. Morgellons affects people of all ages and ethnic groups, worldwide.

Sponsored by The Charles E. Holman Foundation (CEHF), the two-day event boasted attendees comprised of doctors, scientists, Morgellons patients and supporters. Much of this conference was dedicated to refuting the conclusions suggested by the 2011 study by Hylwa et al, of the Mayo Clinic, and the January 25th, 2012 Center for Disease Control (CDC)/Kaiser Permanente Morgellons study.

Highlights of the two-day event included many educational and thought provoking presentations. Canadian microbiologist, Marianne Middelveen, reported on ground-breaking research that she and prominent San Francisco-based physician, Raphael Stricker, published recently in Clinical Cosmetic and Investigational Dermatology, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3257881. This research demonstrates similarities between Morgellons and a bovine spirochetal disease.

“The unusual filaments associated with Morgellons are likely composed of keratin and demonstrated photographic evidence that fibers stem from both pavement epithelial cells and hair follicles, tissues where keratinocytes are the predominant cell type,” stated Dr. Middelveen.

According to Middleveen “these findings conclusively debunk the erroneous theory that this disease is caused by delusional beliefs and that patients self-implant fibers or are intentionally mutilating themselves”. A second publication related to this subject authored by Middelveen, Stricker and other collaborating researchers, is currently in-press and scheduled to be published soon.

Australian Dermatologist Peter Mayne showed clear slides of fibers taken from some of his many Morgellons patients, noting that fibers are subdermal in origin and some originate in the hair bulb. Dr. Mayne is the first practicing dermatologist to thoroughly examine the tissue of Morgellons patients and acknowledge the disease’s unique pathological characteristics.

Mayne outlined differential diagnoses he considers in his Australian clinical practice. Dr. Mayne, along with Randy S. Wymore, PhD., Director of Research at the Center for the Investigation of Morgellons disease, reviewed the history of the CDC’s noninvolvement with Morgellons disease, and refuted the 2012 CDC/Kaiser study results.

A presentation on Institutional Cognitive Dissonance by CEHF Director, Cindy Casey, RN, in collaboration with Elizabeth Rasmussen, PhD, further demonstrated the repudiation by the CDC of its lawful responsibilities towards Morgellons patients as well as to their confused and bewildered medical care providers.

CEHF Associate Director Greg Smith, a pediatrician from Georgia, Dr. Amelia Withington, a Psychiatrist from Pennsylvania, Ginger Savely, DNP, a recognized authority in the medical management of Morgellons disease from Washington, D.C., and Carsten Nicolaus, MD, PhD from Augsburg, Germany, an esteemed medical provider for Morgellons patients in Europe, also gave informative presentations covering a broad range of Morgellons-related topics.

The Morgellons medical conference is an annual gathering in Austin, Texas of medical and scientific professionals and members of the Morgellons community. Sponsored by The Charles E. Holman Foundation in Austin, Texas, its purpose is to discuss the latest scientific discoveries in Morgellons research. The foundation was named for Charles E. Holman, a pioneer in the fight against Morgellons disease.

The official DVD of the conference is now available. To order a copy of the DVD, please visit http://www.thecehf.org.

Related posts:

  1. NEWS: New scientific findings about Morgellons disease
  2. NEWS: Advocate responds to CDC’s conclusion that Morgellons patients are “delusional”
  3. NEWS: Morgellons disease probably a delusion, feds say
  4. NEWS: Morgellons disease is "frightening and profoundly odd"
  5. NEWS: 2-hr cable TV program to explore Morgellons Disease
Comments

19 thoughts on “NEWS: Summary of recent Morgellons conference

    • I believe I’m a sufferer as well = I’ve been reading and studying and have my own theories – you mentioned “biofilm” I know what biofilms are for various life forms – can you explain what biofilm you are referring to? Did you recieve an answer?

    • I have morgellons for 3years with no cure. Recently I found a site that garantees a cure with Neutra silver. Any one heard of this and have they used it? Please reply

  1. I couldn’t believe the CDC had the gull to take an insufficient study, done by a group that was biased at the onset, and claim it was actual scientific research that proves this issue is a mental not physical problem.
    I would like to know why so many of us suddenly went delusional, seeing as that is the diagnosis, and why we all seem to have very similar symptoms, and are seeing the same things associated to the ‘life form’ attacking and invading our bodies!
    Wouldn’t it stand to reason that your animals couldn’t be affected by your delusion? If so, then why are my two canine companions infected with this as well ?
    I’m so grateful for this group meeting and doing all they can for us sufferers out here. We’ve been totally dismissed by most medical communities as being mental cases, and to know that there are those who truly believe this is something organic helps us get through each painful day. And those days can be extreme, believe me!
    Thank you for continuing to study this issue, and trying to find answers. Those of us who are Morgellons sufferers are GRATEFUL!!

    • My Husband and poodlex Bischon all got sick anound the same time , I took my little dog many times to a vet , got a second opinion , they thought it was cushings . My dog gradually got worse neurological problems , sores and many fibres over its back , He had blood tests ,abnormal in the end couldnt walk couldnt even put his leg up to urinate , He was so sick I had him put down . I have been very ill and also started attending the lymes DR.

  2. Jennifer, I too have suffered for many years with this dreadful disease. My family and the doctors tell me there is nothing wrong. I am fighting to prove my sanity. The fibres have gotten into my gums and made them shrink, so now I am so afraid my dentures will shoot out that I keep my hand across my mouth when talking. We must all stick together and prove the existance of this dreadful disease to them.

    • I also have suffered from this disease as so my partner for over 6 years now also our cat is infected as well.
      We went to many doctors with no help,until we found one GP also inflicted with the same condition.
      He helped us in our research to find morgallons disease.
      Then we researched this condition for over 1year,tried every medications and creams which only drained our money but did not help.
      Then I found Nutrasliver plus after use for 2 weeks finally got results and the unbearable systems stopped.
      Please I strongly urge to try ang give Nutrasliver a go,followed prophet you will soon beat this and recover your life and well being.
      You can email Ricky-palka@ gmail.com to order Nutrasliver .
      It is affordable,stop looking now and start getting your life back.
      Carleen Palka

      • Hi Carleen where in the UK are you located. I am going to be moving back and would need to find a GP that could treat morgellons

  3. ITS VERY INSANE THAT THEY DO NOT RECONIZE THIS DISEASE. I THINK ITLL TAKE A HIGH ATHOURITY FIGURE (LIKE THE PRESIDENT OR ONE OF HIS FAMILY MEMBERS) TO CATCH THIS UNEXPLAINED UNDIAGNOSED DISEASE BEFORE ANYTHING IS DONE ABOUT IT. I FEEL LIKE STEPHEN KING COULD MAKE A MOVIE ABOUT MY EXPERIENCES WITH THIS DISEASE. PEOPLE THAT DONT HAVE IT DONT UNDERSTAND WE NEED A CURE. AND I THOUGHT SOMETHING WAS GOING ON WITH MY DOG ALSO. AND NO, NONE OF THE VETS BELIEVED ME. I MADE THE MISTAKE OF TELLING THEM ABOUT MY CONDITION FIRST. WHAT REALY GETS ME THE MOST IS THERE ARE SEVERAL SUFFERERS OUT THERE THAT JUST WILL NOT SAY OR ADMIT THEY ARE SUFFERING FROM THIS. MOST OF THE TIME I CAN LOOK AT SOMEONE AND TELL THEM IF THEY HAVE IT OR NOT. ITS THAT VISIBLE TO ME WHY IS IT NOT TO THE MEDICAL SOCIETY? JUST SAYIN!!!!!!!!!!!!

  4. What an excellent idea. Lyme disease has all the makings of a great movie; disease, lies, and cover-ups. The disease has proven to evolve from pets to people’ and the disease threatens to overrun the world before the majority of us are aware of its existence.

    Is there a cure? Nobody knows, but if there is, it is unknown whether or not it will be given to the population before it is too late.

    There are many films featuring infectious diseases, either as the central theme or as one of the main plot elements. Have you a carefully written script detailing the lengths and breadths of the world you have had to resort to in order to get recognition for your ailment? The world of infectious diseases has been rarely presented in the cinema with accuracy.

    Good luck with it!

  5. Salutations, Please see the report dated January the 8th, 2013, following the one cited up here in the main text. Authors are Marianne Middleween, Burugu, Rasmussen, Kahn, Stricker and all.,published by Dove Clinical & Investigation Dermatology, in the PubMed Section,stating: Morg.is,out of all doubt, a physiologic, infectious disease with presence of spirochetes. Next conference in April 13-14 2013 in Austin (Chs.E.Holman Foundation) At least, hopê for sufferers…………Billie

  6. N.B. The 6th annual conference of Chs. E Holman Foundation, on Morg. will take place on 13 and 14 of April 2013 at Austin, Texas. Sorry for the error………….Billie

  7. I could be barking up the wrong tree but I am treating myself for mycetoma. I endured an insect sting in Sri Lanka 30 years ago, and now remember a rash thing on my foot way back. I am using ketoconazole 2 mg and the shampoo and cream you can buy over the pharmacy counter. Mycetoma occurs in some soils around the equator, India, Afghanistan etc. I got my information from US military medical in Afghanistan where they treated a girl with mycetoma on her face. Just like me it turns out. Mycetoma has it all. The coloured strands the fungal hyphae the goo. We can’t rely on the doctors I’m afraid. Please try this. Huge chunks of stuff came out of my head with first wash no kidding. It’ll take six months as once the fungus dies it must grow out with your old layers of skin. Two tablets a day. Can easily be bought online. Good Luck

  8. When I was suffering from Morgellon’s, I talked my dermatologist into giving me doxycycline even though I tested negative for Lyme Disease (which I’m convinced I had). I couldn’t keep the doxy down, so he also prescribed Ondansetron, a powerful anti-nausea med (BTW it is also a serotonin blocker!). My Morgellon’s lesions soon dried up and now a year after the meds, my skin is clear – except for 2 scabs that stubbornly remain.

    I always thought it odd that, through at least 3 years of open sores, NOT ONE ever got infected. Is that another symptom? My hygiene is not impeccable, and I often run in the heat and dust.

    I hope that all the people suffering from this debilitating disease find a cure soon. My back still itches incessantly at ‘ground zero’, and I’m always in fear of recurrence!

  9. Nancy, i just started the program yesterday. I cannot believe how much Nutra Silver you have to drink a day but another poster here that was 3 weeks into the program said it was working.
    At the end of June we suffered flood damage that created mold in our basement insulation. In an attempt to help with the remediation, my son brought up and opened in the house, a bag of old potting soil that contained mange mites and collembola. I have a compromised immune system and until the dog started showing mite activity, thought my severe infestation was an annual case of poison oak so it was over a week before miticides were used in the house. It gets worse. During cleaning/sterilization i was unable to remove what looked like mold on the coils of an old window A/C unit i had in a spare room used as an office. When we removed it from the 2nd story window (via the inside of the house), realized birds had been nesting outside on the unit. What i was using my hands to try and clean thinking was mold wasn’t at all? I had just gotten the mange mites in my body inder control and now enter pest # 3, bird mites. Those almost sent me to the psych ward. Now i have “plastic” and strange insects oozing from my skin.
    Good luck to you… I’ll let you know how the silver works.

  10. I had this disease for 5 + years. I used to pick my lesions but huge mistake as they got infected. My health turned for the worse. I tried MMS, Nutrasilver but the best help was Hydrogen peroxide and Borax mixture with water taken internally. My lesions are gone.
    I still get fibers but they act like dead skin cells without lesions.
    I used to think that some type of parasites or fungus is the culprit.
    Now I believe that either GMO ‘s or something else that create a bad allergic reaction in our immune system and it start breaking down our own tissues. The hydrogen peroxide gives extra oxygen so new cells can multiply faster.
    This is just my humble opinion…

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