By the time I was diagnosed with Lyme disease in August 2014, I had been sick for two and a half years and seen 13 doctors. I was 33 years old.
It took that long, and that many doctors, for me to stop trusting the medical establishment and start trusting what my body was telling me: I am really sick. I turned to what is known by chronic Lyme sufferers as a “Lyme-literate doctor.” This is a doctor who sees my illness as a tricky, chronic infection that needs more than the recommended two weeks to one month of antibiotics. I’ve been on antibiotics nearly a year, and I may need years more. But I am finally getting better. And it is only because I stopped listening to the medical and scientific powers-that-be who told me this was all in my head.
This is my story. READ MORE.
All I have is hopelessness.
I have no lyme doc, no money anyways.
I just got denied for ss disability and medicaid.
I can’t fill out applications let alone try to work.
It all seems impossible.
I have zero income, can’t even purchase my supplements any more.
I lost my home, car, most belongings.
I have nothing and no one helping me.
I am devastated, hurt and sick and yep, no one believes ya. What a wonderful modern world we live in…
Through my tears… http://www.caringbridge.org/visit/slippingaway
It will still take some time to recover. i always wonder how someone can afford treatment. I lost my treatment because Lyme took my job away. So i suffer. I do you recover all the way and can keep your treatment the rest of your life if you need it. If you relapse, I hope you can get treatment again.
God bless Marcie & Marianne I was fortunate after seeing my MD & then a PA who both misdiagnosed me to have my two friends who have degrees in epidemology & deal with lyme’s 7 etc who saw by blotched ras & symptoms & said you have Lyme’s. 30 days of Doxicycline.
I’m so sorry it took that long for you too. My sister is going through the same situation. How did you finally find a lyme-literate doctor who would listen to you?
I feel your pain. It took 10 years for me and 25 doctors. You do know in your soul when you are dying. So you get busy living or you get busy dying. So I scored the internet and the medical library and a local university. No one believed me either. Then when diagnosed with lyme then doctors still treated with disrespect by saying there was no lyme in my state because apparently all ticks with infection stop at the border.
Misdiagnose for 8 months. Rushed to hospital with 103+* and rising. Had a spinal tap and never felt it. They ruled out a few diseases then found an anti body that fights Lyme. Stayed hospitalized until I went 24 hrs. With a temp. of 100*. Took intravenous antibiotics the whole time. Mega joint and bone pain. Memory, stuttering, balance, muscle, and emergency gall bladder removal and a ruptured disc at L2L3 that finally pain so bad a rod put in. 3yrs of B.S.. Still working on balance & strength. Also tested positive for pressure on the brain. This bites..
So sorry Bob. Do you still have the joint pain? If not what did you take to relieve it?
Truly; yes but not always too bad. I have the very best acupuncturist who worked on me. She was able to test me for certain problems & then treat just that and go on to the next. She also tried, with a mix of herbs, to help with my memory. Don’t know if it worked because I kept forgetting to take it. And now I can’t remember what I did with the box. No lie.
Short answer Yes. Not as bad since my acupuncturist helped me. She tested my system many ways if I failed her test she countered it. Big improvement but it still jumps up and bites me every now and then.